Robin’s Wish…..I paid to watch this documentary on Amazon Prime…and it was so good. It completes his story.
I have listed numerous tips that might help you in your quest to have a more successful caregiver experience. As with everything else you have to judge where your loved-one is in the disease process, and whether what you are reading would work for him/her. Some may be past the point where a particular tip will help, so if it doesn’t, so be it. This is a time in your life where every day you have to learn to be flexible! If you can, then your caregiving experience will be much more successful and have less of a negative impact on you.
There are a number of steps to take once the dementia is confirmed by a neurologist. The steps don’t have to be done exactly in this order, but if you address them you will be in much better shape to follow your dementia journey.
Caregiving during the COVID-19 virus restrictions can add additional stress and isolation to your already burdened lifestyle. Now more than ever, it is important for the caregiver to maintain your “lifelines” of socialization with friends and family. Take this moment in time to learn new ways of keeping in touch to keep yourself rooted in your community!
After diagnosis, if it was made relatively early in your journey, you may have many moments when you can almost convince yourself that things are the same as before . . . that life will just continue as it has, uneventful and unchanging. It’s that defense called “denial” that is alive and well for most caregivers. We have hopes and dreams that we don’t want to relinquish. We want to pretend that life is normal.
A 5-foot-10-inch, 64-year-old man was admitted for evaluation because of throwing a chair in the dining room of the assisted living dementia facility.
All caregivers feel guilt, especially once the diagnosis has been given. Early on we don’t understand why the person with memory loss speaks or acts the way he/she does. I used to get angry at my husband thinking he was not listening to me or didn’t care. It was frustrating, but that was because I kept comparing his actions to the way he used to behave as a fully functioning and competent person…..but slowly over time he had changed.
In this world, we need to love and be loved. We also need to feel a sense of competence or mastery in order to feel good about ourselves. Alzheimer’s slowly dismantles a person’s sense of competence. While living with this disease, the AD person and their spouse, family members, or caregiver(s) do an emotional dementia dance where the steps are always new and always changing.
Many of us will be faced with caregiving when our children are long grown and we are watching our grandchildren grow up. Some of us are faced with caregiving in our 40’s while our children are just beginning adulthood … or even earlier! We were one of those in the sandwich generation, helping take care of our parents and children at the same time. A bit later, I was faced with caring for my husband too.
When focusing on hospital admissions/stays the word delusions pops up a lot, especially when describing our elderly population. What is the difference between delusions and dementia? Here’s an explanation.