My “Forever Friends”

This week is a very hard time for me. I am visiting a friend and his wife as he is transitioning for his walk across The Rainbow Bridge. I met the couple just about 10 years ago, when they reached out for support to the Alzheimer’s Association, and the association matched them up with me in order to help them adjust to a new city.

Continue Reading →

What Is The Difference Between Dementia And Delusions?

When focusing on hospital admissions/stays the word delusions pops up a lot, especially when describing our elderly population. What is the difference between delusions and dementia? Here’s an explanation.

Continue Reading →

Supplements And The Evil Web They Weave

These adds infuriate me. They prey on people who have the diagnosis of dementia, but don’t realize how drug testing works. Yes, experiencing the beginning signs of memory loss can be a scary thing, and these adds are directed at your fear. Most of the items that appear in these types of adds are not really considered drugs. They are classified as supplements.

Continue Reading →

See What Is New In Dementia Research

Periodically I will search the web for newly publicized results of trials and will post them here. So far, no “magic bullets” have been discovered and many scientists are focusing on present healthy populations to see what lifestyle differences may benefit/protect the participants as they age.
It’s a multi-year study so we won’t be hearing what they have learned for a while!

Continue Reading →

40 Sites Around the US To Test A New Drug For Alzheimer’s Disease

This is a big deal. After so many years of failures in finding a drug to stop or even slow down the progression of Alzheimer’s disease (AD) most researchers have moved their focus to prevention of the disease before and signs or symptoms of dementia show up. This leaves those who have already been diagnosed feeling like they have been forgotten.

This study involves a precursor of the drug riluzole, a drug that has already been approved for ALS (amylotrophic lateral sclerosis, 1995). This precursor or “prodrug” as they call it is a related compound with lesser side effects that when taken is converted by the body into riluzole. It’s name is Troriluzole. The fact that it is converted by the body makes it a safer compound as well as more easily tolerated. For ALS, riluzole is an important find. Although it doesn’t cure the disease or quell the symptoms, it has been shown to increase survival time by at least a year and a half.

Continue Reading →

Sacrifice

I have been thinking about sacrifice for a great number of years. The meaning I’m referring to is “to give up something usually for a better cause”. As a caregiver, I sacrificed a lot of things in my 19 years: autonomy, independence, companionship, sexuality, and financial security. Being in a very loving marriage, I had to help my husband through his disease. He had no choice, and I woudn’t even consider the other major choice which was to leave him! Some people do.

Continue Reading →

Creating A Dementia-Friendly Emergency Department

The Emergency Departments of today are scary places for caregivers and those with dementia. A person with dementia is essentially experiencing slow and steady brain death in various but relatively predictable areas of the brain. As the disease progresses, the person will have all of their senses affected in some way: sight (narrowing of the field of vision), sound (loud noises hurt and are scary, constant noise causing sensory overload), taste ( changes of likes and dislikes), smell (loss of detection of smoke, gas, chemicals, body odor, spoiled food, urine or feces) and touch (more sensitive). Because of these sensory changes, the caregiver constantly adjusts the environment at home to reduce anxiety and have a more predictable (routine) and successful day.

Continue Reading →

Holiday Hints For Dementia Caregivers

Holidays are exciting times of the year, but they can be very stressful and fraught with many pitfalls if you don’t plan carefully beforehand. When planning for those special events you must take into consideration how far into the dementia your loved-one is, how much help they will need, how quickly they become overstimulated, how much rest they require, and how much recuperation time they must have after the event is over.

Continue Reading →

A Taste Of Dementia

The other night I had a dream, really a nightmare I guess. It was one of the most emotional and anxiety producing dreams I have ever had. The setting wasn’t clear, but I think I was in a high school classroom, and we were taking a test. It wasn’t all written. Some questions you had to answer on paper, some were multiple choice, but others were a test of following through with the directions and completing a finished product.

Continue Reading →