On September 18th of this year the Alzheimer’s Prevention Initiative’s Generation Program (Novartis & Amgen with the Banner Alzheimer’s Institute) announced that they have stopped the BACE inhibitor drug study because of unexpected drops in memory and thinking of it’s study participants. When the group got word that this negative effect was happening, they looked at the data coming in from various study venues to verify that outcome. Once confirmed, they stopped the study cold.
All caregivers feel guilt, especially once the diagnosis has been given. Early on we don’t understand why the person with memory loss speaks or acts the way he/she does. I used to get angry at my husband thinking he was not listening to me or didn’t care. It was frustrating, but that was because I kept comparing his actions to the way he used to behave as a fully functioning and competent person…..but slowly over time he had changed.